Friday, September 2, 2016

Last day...



A month ago I started a Pozible project for my book Aneurysms with Aphorisms. It took me two days to get it set up, add in a video and some quote pics and information, and posted it. I posted pics, sometimes from the project or other times from elsewhere, every day, until about 15 days I got frustrated with it. I got serious again on it with only 12 days to go. I started to add the project website onto whatever news I posted on BASA. I went into National Stroke Foundation, Synapse, Lions, Rotary and a lot of other charity places around my area, and posted it on some of the FB pages I follow. I never had any response.

Now, with only one day to go and only 5 people showing up to support this, I’m almost in tears.

Why can’t I get through to BASA when I’m posting pretty much every day on there?

Why couldn’t I get any indication from any other place where I posted it or emailed it that yes, they saw it and passed it on?

Why was there only 3 BASA people of the 5 who supported me?

Why would there have been more than 2,000 viewers on a recent BASA post but none who would look through the project and help me?

Why don’t so many people on BASA – or elsewhere - care?

I know what leads BASA followers on – cuppas which Maya, the page owner, posts and pins up to the top. National BA week where Maya has posted some stuff that she’s selling to raise funds for Brain Foundation – hand sanitiser, pens, bracelets, ribbons. So many responded today to pay for that, yet none of them have supported me!

I’d been the administrator of BASA since December 2014. I designed the logo which is on the page and which Maya has used on the stuff she sells. I wrote my book about brain aneurysms. Yes, it was about me, but has heaps of information for people who have suffered from brain aneurysms, for people who have cared for their friends/family/partner who suffered from brain aneurysms, for anyone who wants that information.

I am very grateful to the BASA 3 people who supported my book project. Your money will stay in your own pocket if it doesn’t get up to target in the last ONE day. Thank you for your help, I love you people.

I will be in tears tomorrow.

3 comments:

  1. Hi Louisa, so sad to hear this. There's never a day where I fai to stop and read this page for new postings, comments and stories. It helped me in some ways to alleviate my anxiety, fear in knowing that I am not alone in this experience. By sharing my story in some of the pages, I know that it will somehow support others like it did for me. I would love to read your story hence I'm one of the 3 who is willing to support your book. It's unfortunate not many have and it has unfortunately now come to its last day. I can only hope Pozible would consider an extension and try again. How about getting some funding from stroke foundation or natiobal brain injury. I find also that not many contribute their story in Australia. I know few people who are aneurysm survivors but never seen their names on the page. I often visit the brain foundation in Masachussets and there's so many that contribute their stories.
    I hope you find another way to get your story published, i.e gold coin donation section. Don't be sad and good luck with it. Love from your supporter.
    ZM

    ReplyDelete
  2. Hi Louisa, so sad to hear this. There's never a day where I fai to stop and read this page for new postings, comments and stories. It helped me in some ways to alleviate my anxiety, fear in knowing that I am not alone in this experience. By sharing my story in some of the pages, I know that it will somehow support others like it did for me. I would love to read your story hence I'm one of the 3 who is willing to support your book. It's unfortunate not many have and it has unfortunately now come to its last day. I can only hope Pozible would consider an extension and try again. How about getting some funding from stroke foundation or natiobal brain injury. I find also that not many contribute their story in Australia. I know few people who are aneurysm survivors but never seen their names on the page. I often visit the brain foundation in Masachussets and there's so many that contribute their stories.
    I hope you find another way to get your story published, i.e gold coin donation section. Don't be sad and good luck with it. Love from your supporter.
    ZM

    ReplyDelete
  3. Thank you so much ZM. I kept trying, but now I am feeling completely taken over by people who don't care at all about someone with ABI or TBI, even with my book. I am living totally alone in what I thought was a "retirement village". I simply chose not to eat the food the managers provide when I could save my own money by buying my own, but I've been labelled as a "nutcase" and ignored. 2.5 years since my brain aneurysm and stroke. So sad for anyone who was on their own before that, and now lives completely alone, without a choice. Thank you, again.

    ReplyDelete